In this post, I'm going to attempt to digest my own experience of shame in terms of disability and the larger context that surrounds it. Similar to my previous post, a lot of this draws on the essay “Constructing Normalcy: The Bell Curve, the Novel, and the Invention of the Disabled Body in the Nineteenth Century” … Continue reading Disability and Shame
There is no such thing as average. There is no such thing as above- or below- average. There is no such thing as ideal, except in the face of the Divine.
This post is about losing privilege. Let me be very clear: The people for whom privilege is a default setting, for whom privilege means an ongoing exercise of listening and empathy - those people are not losing rights en masse. For GLBTQ folks to want to be legally married, it does absolutely nothing to straight folks' marriages … Continue reading Upon Loss of Privilege
This is going to be raw and unedited. It isn't going to make any sense. It just has to come out. Today is the National Day of Prayer, according to hashtags.
Even with people coming to the house for lunch and visitors breezing through town I'm lonely. I know this is because I'm not talking about the reality of my situation. I'm not letting anyone in. Not really. Because I don't want to complain. And right now, if I let people into my emotional space, it is largely negative.
Since my diagnosis of psoriatic arthritis three months ago, I'm adjusting to budgeting my energy as a spoonie. One of the things that I'm doing is negotiating heavily with the over-achiever type-A part of myself to make sure that I don't overdo things. Recently, I realized that I need to put that aspect of my … Continue reading New Spoonie Game = A Whole New Rule Book
Last week, I got accepted to pursue graduate studies at the Pacifica Graduate Institute. I start in the fall. One of the things that I'll do in my Mythological Studies program is the archetypal analysis of fairy tales. As I've also been seeing a Jungian analyst, and I've been a geek about these things for … Continue reading The Princess and the Pea: My Sensory Diet Does Not Include Peas
This picture is of my back yard about 3 months ago. The English ivy at the fore is invasive. The wisteria vines are ages old and have taken over my yard and trees with great, ropy Tarzan-tempters. There are so many scraggly vine-covered trees that there is only shade, and only more vines that thrive in … Continue reading There’s a Metaphor in Here Somewhere
I am a planner. I'm the kind of planner that thinks bullet journals look cute for beginners. I'm the kind of planner who makes plans for plans, and contingency plans those plans. I've said often that I'm very good at being spontaneous, as long as it's on my to do list. Psoriatic Arthritis has forced … Continue reading Learning to Improvise
Is healthcare a human right? Is it the government's responsibility?